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It's been a year

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Update on Gerard's year and health. The good news: Gerard progressed from third grade (all A's) and will be going to fourth grade next fall. This is nothing short of a miracle! He missed ten days of school (instead of 50 like in second grade), and somehow managed to be strong enough to play a role in Ballet West's Nutcracker, affectionately known in the cast as "Spank Boy" for Cast A, which literally brought him back to life in a way I'd never imagined. He loves to dance and perform. Trips to Salt Lake to rehearse did wonders for his self-confidence and as tiny as he was. He matured leaps and bounds by being around professional dancers and other boy ballet dancers. He's become a voracious reader, and though he still enjoys math and science, he's more inclined in the arts at this time. He still enjoys kicking the soccer ball around, and also has recently learned to ride his bike after having to put that on hold for two years. If you zoom in on his
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Premiere: from the bottom

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Yesterday, I decided that I needed a place to share information with a broader audience about my life living with a child who has a chronic illness. Navigating that can be tricky for anyone, much less a Utah mom. I'll get to those specifics in a minute. Let's just say that yesterday I hit bottom. You know it if you've been there. The day begins and continues with tears, frustration, anger, fear, prayers, more bad thoughts of when will this get any better, and how will I put dinner on the table and move on with my life. Seriously. If you're a mom, you've probably been there once or twice, maybe more. No more details necessary when your kid is sick. I don't have to spell it out. You know. I am a mom. I live in Ogden, Utah beforewhich, I was not a mom. Maybe this is stating the obvious, but I'm a little bit older than most moms here. (Hint: I'm way past my thirties).  In fact, my first day at a new job in Utah promted the question I never thought I'd
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