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It's been a year

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Update on Gerard's year and health. The good news: Gerard progressed from third grade (all A's) and will be going to fourth grade next fall. This is nothing short of a miracle! He missed ten days of school (instead of 50 like in second grade), and somehow managed to be strong enough to play a role in Ballet West's Nutcracker, affectionately known in the cast as "Spank Boy" for Cast A, which literally brought him back to life in a way I'd never imagined. He loves to dance and perform. Trips to Salt Lake to rehearse did wonders for his self-confidence and as tiny as he was. He matured leaps and bounds by being around professional dancers and other boy ballet dancers. He's become a voracious reader, and though he still enjoys math and science, he's more inclined in the arts at this time. He still enjoys kicking the soccer ball around, and also has recently learned to ride his bike after having to put that on hold for two years. If you zoom in on his...
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We have been home a week now

We've been home from Mayo almost a week now. I miss it already. I miss the professional friendliness, the transparency of medical records, doctor's notes and the seamless way the system works administratively. I miss waiting "standby" to get in when we need to get in, and I miss the maximum allowed family members in the clinic. It's a crammed space here. I miss the overall seriousness that we have a kid who is sick enough to be in the said space to begin with. And I miss people looking me in the eye to talk to me = not a computer screen while we discuss why we are here and what happens next. What happens next? We wait 3 weeks for a test. And then we wait some more. Because as usual, Gerard doesn't "look" sick on the outside. Except they can't see that he's blistered and sunburned under his t-shirt. Because the sun penetrates the sunscreen and the tee and he burns because of the medication he takes. All before 9:30 am. Two layers...
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Happy Birthday Gerard! This is for you. All of you who helped Gerard (and his parents) make to another milestone. Gerard turns 9 years old tomorrow, on Christmas Eve. To all the followers of Gerard and his health, supporters of our family and to the GoFundMe account last summer that sent G to the Mayo Clinic in June, a very big thank you for your support. Our friends helped us to get where we are today. You did it! See? You helped us! You helped Gerard get the care he needed! Yes, Gerard is wearing the same sweater he wore last Christmas, and that's just fine! He's here. We're all here, and we're all grateful. There's more to update but I'm short on time. He's still in chemo...and there's no end in sight. He's in a new school that he likes a lot. He has only been absent for illness a few days. He's been well enough to perform in Ballet West's Nutcracker as a Party Boy (Spank Boy role), which he absolutely loved and will be a lifelong...
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