Gerardsmomutah

Have you ever had a doctor's referral service call you, leave a message to call them back, then when you do call them back they won't tell you what the referral is for? Outsourcing wastes so much time and money. Wasteful healthcare beauracracy.  #solame #notfunny #cantmakethisup

We've been home from The Mayo Clinic in Rochester, MN for three weeks. Three. Whole. Weeks! Life has fallen back into the routine of running back and forth to Primary Children's Medical Center for follow-up visits and coordination of the continuity of care in Utah. It's beyond amazing how efficient things were there at Mayo after we got settled in. And it's beyond amazing how, with just one doctor (pediatrician) coordinating other specialist visits, how easy it was to get through the system by "waitlisting" for openings getting same-day appointments. Yes, we saw medical students, interns and residents, but boy oh boy, were they the cream of the crop! I can say that I miss the service, the professionalism and the overall compassionate care G received. Now that we're home, I'm still in shock over how it's been three weeks and some of the offices have not returned my calls to coordinate simple visits as ordered by the Mayo docs. It just "i...

Gerardsmomutah: Post op

We've been home from Mayo almost a week now. I miss it already. I miss the professional friendliness, the transparency of medical records, doctor's notes and the seamless way the system works administratively. I miss waiting "standby" to get in when we need to get in, and I miss the maximum allowed family members in the clinic. It's a crammed space here. I miss the overall seriousness that we have a kid who is sick enough to be in the said space to begin with. And I miss people looking me in the eye to talk to me = not a computer screen while we discuss why we are here and what happens next. What happens next? We wait 3 weeks for a test. And then we wait some more. Because as usual, Gerard doesn't "look" sick on the outside. Except they can't see that he's blistered and sunburned under his t-shirt. Because the sun penetrates the sunscreen and the tee and he burns because of the medication he takes. All before 9:30 am. Two layers...